Coping Strategies of Mothers in Raising Children with Autism: A Literature Review
DOI:
https://doi.org/10.38035/ijphs.v2i4.718Keywords:
mothers, autism, coping strategies, problem-focused coping, emotion-focused copingAbstract
This study examines mothers coping strategies in raising children with autism through a literature review method. Mothers often encounter multifaceted challenges, including emotional, financial, and social difficulties, in caring for children with special needs. This study synthesizes existing research to identify effective coping mechanisms and the factors influencing their success. The literature review findings indicate that mothers predominantly utilize problem-focused and emotion-focused coping strategies. The effectiveness of these strategies is significantly influenced by variables such as social support, stress management, cognitive adaptation, participation in community or support groups, educational attainment, economic resources, and access to support services. These insights are crucial for practitioners and policymakers to develop interventions that better support mothers in managing the complexities of raising children with autism. The study also highlights the need for further research to determine the most effective interventions across diverse contexts.
References
Ameis, S. H., Lai, M. C., Mulsant, B. H., & Szatmari, P. (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond. In Molecular Autism (Vol. 11, Issue 1). BioMed Central. https://doi.org/10.1186/s13229-020-00365-y
Cai, R. Y., Richdale, A. L., Uljarevi?, M., Dissanayake, C., & Samson, A. C. (2018). Emotion regulation in autism spectrum disorder: Where we are and where we need to go. In Autism Research (Vol. 11, Issue 7, pp. 962–978). John Wiley and Sons Inc. https://doi.org/10.1002/aur.1968
Destriyani. (2013). Strategi Coping dan Kelelahan Emosional (emotional exhaustion) pada Ibu yang Memiliki Anak Berkebutuhan Khusus. Jurnal Psikoborneo. Vol 1. No. 2
Furrukh, J., & Anjum, G. (2020). Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD. Cogent Psychology, 7(1). https://doi.org/10.1080/23311908.2020.1728108
Gobrial, E. (2018). The lived experiences of mothers of children with autism spectrum disorders in Egypt. Social Sciences, 7(8). https://doi.org/10.3390/socsci7080133
Higgins, L., Mannion, A., Chen, J. L., & Leader, G. (2023). Adaptation of Parents Raising a Child with ASD: The Role of Positive Perceptions, Coping, Self-efficacy, and Social Support. Journal of Autism and Developmental Disorders, 53(3), 1224–1242. https://doi.org/10.1007/s10803-022-05537-8
Iadarola, S., Pérez-Ramos, J., Smith, T., & Dozier, A. (2019). Understanding stress in parents of children with autism spectrum disorder: a focus on under-represented families. International Journal of Developmental Disabilities, 65(1), 20–30. https://doi.org/10.1080/20473869.2017.1347228
Jacques, C., Saulnier, G., Éthier, A., & Soulières, I. (2022). Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies. Journal of Autism and Developmental Disorders, 52(8), 3626–3638. https://doi.org/10.1007/s10803-021-05233-z
Karaca, A., & Konuk ?ener, D. (2021). Spirituality as a coping method for mothers of children with developmental disabilities. International Journal of Developmental Disabilities, 67(2), 112–120. https://doi.org/10.1080/20473869.2019.1603730
Kuru, N., & Piyal, B. (2018). Perceived social support and quality of life of parents of children with autism. Nigerian Journal of Clinical Practice, 21(9), 1182–1189. https://doi.org/10.4103/njcp.njcp_13_18
Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10(MAR). https://doi.org/10.3389/fpsyg.2019.00464
Muchlisa, N. (2020). Coping Strategies Used By Mothers in Children with Autism. In 2238 Indian Journal of Public Health Research & Development (Vol. 11, Issue 03).
Papadopoulos, D. (2021). Mothers' experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences, 11(3), 1–16. https://doi.org/10.3390/brainsci11030309
Pohl, A. L., Crockford, S. K., Blakemore, M., Allison, C., & Baron-Cohen, S. (2020). A comparative study of autistic and non-autistic women's experience of motherhood. Molecular Autism, 11(1). https://doi.org/10.1186/s13229-019-0304-2
Rahmania, et al. (2016)., Strategi Coping Ibu dengan Anak Gangguan Spektrum Autisme ; (Studi Kasus : Orangtua Murid Taman Kanak-Kanak Mutiara Bunda). Jurnal Ilmu Pendidikan., Vol 5 No 5,2104-2116, https://edukatif.org/index.php/edukatif/index
Sari, N., Zulkarnain, & Marimbun. (2021). Coping strategy of a single mother in overcoming child inferiority attitude. INSPIRA: Indonesian Journal of Psychological Research, 2(2), 41–49. https://doi.org/10.32505/inspira.v2i2.3133
Shattnawi, K. K., Bani, Saeed, W. M., Al-Natour, A., Al-Hammouri, M. M., Al-Azzam, M., & Joseph, R. A. (2021). Parenting a Child With Autism Spectrum Disorder: Perspective of Jordanian Mothers. Journal of Transcultural Nursing, 32(5), 474–483. https://doi.org/10.1177/1043659620970634
Shepherd, D., Landon, J., Taylor, S., & Goedeke, S. (2018). Coping and care-related stress in parents of a child with autism spectrum disorder. Anxiety, Stress and Coping, 31(3), 277–290. https://doi.org/10.1080/10615806.2018.1442614
Talcer, M. C., Duffy, O., & Pedlow, K. (2023). A Qualitative Exploration into the Sensory Experiences of Autistic Mothers. Journal of Autism and Developmental Disorders, 53(2), 834–849. https://doi.org/10.1007/s10803-021-05188-1
Vernhet, C., Dellapiazza, F., Blanc, N., Cousson-Gélie, F., Miot, S., Roeyers, H., & Baghdadli, A. (2022). Coping strategies of parents of children with autism spectrum disorder: a systematic review.
Wang, L., Li, D., Pan, S., Zhai, J., Xia, W., Sun, C., & Zou, M. (2021). The relationship between 2019-nCoV and psychological distress among parents of children with autism spectrum disorder. Globalization and Health, 17(1). https://doi.org/10.1186/s12992-021-00674-8
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